I Just Want to Take a Walk!

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Early Global Positioning System

Early Global Positioning System (Photo credit: Chris Hunkeler)

A diagnosis of Alzheimer’s disease or dementia can be frightening, costly and life changing. I often remind people facing the disease that it can be quite slow-moving in early stages, and that managing the symptoms of memory loss can be achieved with less intrusion.  However, reacting to, and planning for transient symptoms during times of stress, pain, and emotional duress becomes an unfortunate and necessary focus for care planning that is costly, limiting, and intrusive. It is like your annual review at work being based only on the day you were sleep deprived, painfully injured, or amidst a family tragedy: one bad day ruining your chances of a raise, or advancement.

I am hopeful that technology may solve some of the problems raised by transient symptoms plaguing otherwise highly functioning dementia sufferers. Applying technology could actually increase independence and quality of life for people suffering from dementia, and potentially alleviate some of the financial toll on families, and the health care system.

Safely allowing people at risk of getting lost while taking a walk is one problem that seems easily solved with existing and available GPS technology.

Here is the scene: an alarm on the front door of an assisted living community goes off. A staff member runs outside to intercept an annoyed elderly resident. Imagine the staff pleading with a person, who has decades more life experience, and accomplishment, that they aren’t allowed to go outside alone, and additionally, that no one is available to go out with them immediately. Not empowering at all.

It seems a stretch to refer to GPS technology as fantastic, since at this point it seems a bit mundane, even to severely directionally challenged people like myself. Yet despite widespread use and availability of GPS in other applications, I don’t know of any assisted living communities employing this technology. Barring a person with a substantial risk for fall and severe confusion, use of GPS technology seems like the least intrusive way to maintain feelings of independence, empowerment, and freedom. A recent study from SINTEF, the largest independent research organization in Scandinavia, reports that despite criticism over of this type surveillance, their study is less intrusive than alternatives, provides families piece of mind, and allows dementia sufferers “increased levels of freedom, mobility and independence.”

This is far from a new idea, so why aren’t we seeing more of it?

It is difficult to maintain independence in the face of a scary diagnosis, annoying alarms, and varying levels of “house-arrest.” But perhaps safety and peace of mind can be achieved by employing technology in a few new and obvious ways.

GPS Tracking and Dementia – SINTEF Press Release

19th century therapy for Parkinson’s disease may help patients today

sciencedaily.com

Interesting revival of a 19th century study by Rush University Medical Center researchers. While the successes noted have been labeled “placebo” or due to “nonspecific factors,” the relief patients experience are still real. Increased large motor skill and decreased tremors are nothing to ignore.

It would seem that half of this study can be recreated in anyone’s home immediately. Simply pop a relaxation CD into a headset, and sit back quietly in a comfortable chair for 30 minutes.  Nothing to lose, but 30 minutes.

19th century therapy for Parkinson’s disease may help patients today.

Hot Group Topic: Article – How Doctors Die

CT Scanner, Crash Cart

CT Scanner, Crash Cart (Photo credit: Civilian Scrabble)

The blog piece, How Doctors Die, It’s Not Like the Rest of Us, But It Should Be by Ken Murray, MD, has come up repeatedly in more than one of my San Francisco support groups, and around the internet, and newspapers, and blogs. . .

It’s not a frequent topic of discussion, but doctors die, too. And they don’t die like the rest of us. What’s unusual about them is not how much treatment they get compared to most Americans, but how little.

An interesting read, and something to think about when planning for yourself and your loved ones.  Just a bit of the ripple effect created by this article can be explored in the related article section below  The Time article by Shannon Brownlee also nicely expands on the themes begun in Ken Murray’s article.

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