I Just Want to Take a Walk!

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Early Global Positioning System

Early Global Positioning System (Photo credit: Chris Hunkeler)

A diagnosis of Alzheimer’s disease or dementia can be frightening, costly and life changing. I often remind people facing the disease that it can be quite slow-moving in early stages, and that managing the symptoms of memory loss can be achieved with less intrusion.  However, reacting to, and planning for transient symptoms during times of stress, pain, and emotional duress becomes an unfortunate and necessary focus for care planning that is costly, limiting, and intrusive. It is like your annual review at work being based only on the day you were sleep deprived, painfully injured, or amidst a family tragedy: one bad day ruining your chances of a raise, or advancement.

I am hopeful that technology may solve some of the problems raised by transient symptoms plaguing otherwise highly functioning dementia sufferers. Applying technology could actually increase independence and quality of life for people suffering from dementia, and potentially alleviate some of the financial toll on families, and the health care system.

Safely allowing people at risk of getting lost while taking a walk is one problem that seems easily solved with existing and available GPS technology.

Here is the scene: an alarm on the front door of an assisted living community goes off. A staff member runs outside to intercept an annoyed elderly resident. Imagine the staff pleading with a person, who has decades more life experience, and accomplishment, that they aren’t allowed to go outside alone, and additionally, that no one is available to go out with them immediately. Not empowering at all.

It seems a stretch to refer to GPS technology as fantastic, since at this point it seems a bit mundane, even to severely directionally challenged people like myself. Yet despite widespread use and availability of GPS in other applications, I don’t know of any assisted living communities employing this technology. Barring a person with a substantial risk for fall and severe confusion, use of GPS technology seems like the least intrusive way to maintain feelings of independence, empowerment, and freedom. A recent study from SINTEF, the largest independent research organization in Scandinavia, reports that despite criticism over of this type surveillance, their study is less intrusive than alternatives, provides families piece of mind, and allows dementia sufferers “increased levels of freedom, mobility and independence.”

This is far from a new idea, so why aren’t we seeing more of it?

It is difficult to maintain independence in the face of a scary diagnosis, annoying alarms, and varying levels of “house-arrest.” But perhaps safety and peace of mind can be achieved by employing technology in a few new and obvious ways.

GPS Tracking and Dementia – SINTEF Press Release

Who are The Elders?

I read about and work with illness so much that I thought I would put a spotlight on an organization called The Elders. This group of extraordinary, accomplished “retirees” continue to do extraordinary things later in life.

The Elders is an inspiring group of highly accomplished international elders working to make changes in the world, maintain idealism and hope in places and on issues where hope is hard to come by. Frankly, anytime I see President Jimmy Carter’s name mentioned I get excited. This group of peace-making, do-gooders is made up of the likes of Desmond Tutu, Mary Robinson, Kofi Annan, Ela Bhatt and many more notable freedom fighters and educators of the masses.  Take a look…

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Blog Review: Seniors Buck Stigma & Find Help in Therapy

The National Alliance on Mental Illness reports that more than 6.5 million of the 35 million Americans aged 65 years or older are clinically depressed. While some may have experienced episodes of depression in the past, many seniors experience depression late in life.  This New York Times Well Blog post combs over some of the causes for depression in seniors, how it sometimes looks, and the growing trend in seniors seeking therapy.

via Blog Review: Seniors Buck Stigma & Find Help in Therapy.

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Re-post: For Traumatized Caregivers, Therapy Helps

This post from New York Times’ The New Old Age blog was recently brought to me by a family caregiver. It is a great example of why Caregiver stress is not something to shrug off.  Author Judith Graham writes about how the stress and emotional burdens of caregiving have a cumulative effect on the caregiver that is not unlike Post Traumatic Stress Disorder (PTSD).

Go to the original article –>>

19th century therapy for Parkinson’s disease may help patients today

sciencedaily.com

Interesting revival of a 19th century study by Rush University Medical Center researchers. While the successes noted have been labeled “placebo” or due to “nonspecific factors,” the relief patients experience are still real. Increased large motor skill and decreased tremors are nothing to ignore.

It would seem that half of this study can be recreated in anyone’s home immediately. Simply pop a relaxation CD into a headset, and sit back quietly in a comfortable chair for 30 minutes.  Nothing to lose, but 30 minutes.

19th century therapy for Parkinson’s disease may help patients today.

Skin Cells Reprogrammed Into Brain Cells

neuron fractal 4

neuron fractal 4 (Photo credit: Anthony Mattox)

A little creepy and a little cool, scientists at the Gladstone Institute report that they have turned the skin cells of mice and adult humans into brain cells. Those brain cells then quickly transformed themselves into functional neurons and then into neural networks.  Basically, they’ve created living models of the human brain. Continue reading

Dr. Jane’s Special Presentation in May

Step into my Shoes.

Validating the Older Person with Memory Loss

Thursday, May 17th 2012 from 8:00AM-10:00AM
Presented at San Clemente Villas by the Sea
660 Camino de Los Mares, San Clemente

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Alzheimer’s Disease Progress Report: A Deeper Understanding

Check out this very informative report on Alzheimer’s Disease…

Go to  http://www.nia.nih.gov/alzheimers/publication/2010-alzheimers-disease-progress-report-deeper-understanding

The National Institute on Aging (NIA), part of the Federal Government’s National Institutes of Health (NIH) at the U.S. Department of Health and Human Services, has primary responsibility for basic, clinical, behavioral, and social research in Alzheimer’s disease, aimed at finding ways to treat and, ultimately, prevent this disease. The Institute’s Alzheimer’s disease research program is integral to its mission, which is to enhance the health and well-being of older people. This 2010 Progress Report on Alzheimer’s Disease summarizes Alzheimer’s research conducted or supported by the NIA and other components of NIH, including: Continue reading